Corporate Banner
Satellite Banner
Stem Cells, Cellular Therapy & Biobanking
>
Scientific Community
 
Become a Member | Sign in
Home>News>This Article
  News
Return

Researchers, Guardians of Trust in Biobank Research?

Published: Monday, February 25, 2013
Last Updated: Monday, February 25, 2013
Bookmark and Share
Do we trust biobank researchers? In his doctoral thesis, Linus Johnsson claims that we do: At least in Sweden. And since we do, researchers in turn have a moral responsibility towards us.

Linus Johnsson, medical doctor and bioethicist at the Centre for Research Ethics & Bioethics (CRB), will defend his thesis on trust in biobank research. Trust is a sensitive issue in all research, but perhaps particularly so when it comes to biobanks. There has been debate on whether the police should be able to access samples, and whether this would lead to distrust and to people withdrawing their samples. In Sweden, the PKU biobank became famous in 2003 after foreign minister Anna Lindh’s murderer was identified through blood stored there.

Public trust in the research community is often measured in surveys. In one study, Linus Johnsson shows that people may be more willing to donate samples than most of these surveys indicate. Especially if health care personnel approach them face-to-face. He believes that this is because relationships of trust are important in our decision making.

In another study, Linus Johnsson found that trust is very much present, at least in the Swedish biobank settings he has studied. According to him, researchers have to consider the expectations that people have of them. The fact that they are trusted in turn means that they have a responsibility towards the public.

Despite ethics review, guidelines and informed consent procedures, ethical issues will always arise during the course of a research project, says Linus Johnsson. He warns against putting too much trust in regulatory systems.

“Relying on formal rules and regulations to guarantee research participants’ trust is not enough. They can never cover all ethical considerations that researchers should make”, he says.

In his thesis, Linus Johnsson sees a danger that the review system fosters researchers to a kind of moral complacency. If we trust the system to take care of everything we risk researchers becoming blind to the ethical issues that are not covered by rules.

“Putting too much trust in the system could potentially alienate researchers to ethics. Following rules is not enough. Researchers and institutions have to reflect on what their duties are”, Linus Johnsson says.


Further Information

Join For Free

Access to this exclusive content is for Technology Networks Premium members only.

Join Technology Networks Premium for free access to:

  • Exclusive articles
  • Presentations from international conferences
  • Over 3,100+ scientific posters on ePosters
  • More than 4,500+ scientific videos on LabTube
  • 35 community eNewsletters


Sign In



Forgotten your details? Click Here
If you are not a member you can join here

*Please note: By logging into TechnologyNetworks.com you agree to accept the use of cookies. To find out more about the cookies we use and how to delete them, see our privacy policy.


Scientific News
A Boost for Regenerative Medicine
Growing tissues and organs in the lab for transplantation into patients could become easier after scientists discovered an effective way to produce three-dimensional networks of blood vessels, vital for tissue survival yet a current stumbling block in regenerative medicine.
Heart Defect Prediction Technology Could Lead to Earlier, More Informed Treatment
Experimental method uses genetics-guided biomechanics, patient-specific stem cells.
Immune Cells Remember Their First Meal
Scientists at the University of Bristol have identified the trigger for immune cells' inflammatory response – a discovery that may pave the way for new treatments for many human diseases.
Cancer Cells Coordinate to Form Roving Clusters
Rice University scientists identify ‘smoking gun’ in metastasis of hybrid cells.
Bio-Mimicry Method For Preparing & Labeling Stem Cells Developed
Method allows researchers to prepare mesenchymal stem cells and monitor them using MRI.
Transcription Factor Isoforms Implicated in Colon Diseases
UC Riverside study explains how distribution of two forms of a transcription factor in the colon influence risk of disease.
New Bio-Glass Could Make it Possible to Re-Grow or Replace Cartilage
Researchers at Imperial College London have developed a material that can mimic cartilage and potentially encourage it to re-grow.
Stem Cell Advance Could Be Key Step Toward Treating Deadly Blood Diseases
UCLA scientists get closer to creating blood stem cells in the lab.
Harnessing Engineered Slippery Surfaces For Tissue Repair
A new method could facilitate the transfer of intact regenerating cell sheets from the culture dish to damaged tissues in patients.
Brazilian Zika Virus Strain Causes Birth Defects in Experimental Models
First direct experimental proof of causal effect, researchers say.
SELECTBIO

SELECTBIO Market Reports
Go to LabTube
Go to eposters
 
Access to the latest scientific news
Exclusive articles
Upload and share your posters on ePosters
Latest presentations and webinars
View a library of 1,800+ scientific and medical posters
3,100+ scientific and medical posters
A library of 2,500+ scientific videos on LabTube
4,500+ scientific videos
Close
Premium CrownJOIN TECHNOLOGY NETWORKS PREMIUM FOR FREE!