The Voice of the Stem Cell Community
Conference Recording Feb 04, 2013
About the Speaker
Bernard Siegel is the founder and full-time executive director of the nonprofit Genetics Policy Institute (GPI) based in Wellington, (Palm Beach County) Florida. He is the founder and the co-chair of the World Stem Cell Summit series of global conferences and editor-in-chief of the World Stem Cell Report. He is a past co-chair of the Governmental Affairs Committee of the International Society for Stem Cell Research (ISSCR). At the University of Miami Miller School of Medicine, Mr. Siegel serves on the Governance Advisory Board of the Interdisciplinary Stem Cell Institute and as a member the Embryonic Stem Cell Research Oversight (ESCRO) Committee.
The “pro-cures” movement is a consumer movement that originated out of restrictive policies impacting human embryonic stem cell research. Much like the AIDS/HIV and breast cancer patient movements that resulted in there being increased public awareness that significantly accelerated treatments of those afflictions, the increasingly empowered pro-cures movement must take aim at producing tangible results, not only defending hESCR, but accelerating the pace of translation to produce effective treatments and cures. In order to accomplish its mission, it would serve the stakeholder communities representing patients, industry and science to work off the same “playbook” and to align their advocacy agenda. What good is curing a mouse of diabetes if it will take 30 years to bring the cure to the human population due to regulatory impasses, lack of reimbursement strategies and improper collaboration between stakeholders? This presentation will describe new areas of collaboration and shared platforms that will deliver on the mandate to deliver cures.