Opinionated Science Episode 9: The Ethics of Genetics Testing: “Duty of Care”, Consent and Data Security

Podcast

Published: July 17, 2020

Opinionated Science Episode 9: The Ethics of Genetics Testing: “Duty of Care”, Consent and Data Security content piece image

Opinionated Science is Technology Networks’ homemade podcast, where our team of scientists-turned-journalists cut out the chewy jargon and serve up slices of the most fascinating stories from the world of science. Expect a new Opinionated Science every other Friday.

Genetic data is moving to the mainstream. Testing, both in the clinic and through direct-to-consumer delivery, is much quicker and cheaper then ever before. But these advances have come with a lot of ethical baggage. In this podcast we discuss how clinical testing can throw up surprise results for doctor and patient, the test data that is helping fight COVID-19 and how one of our own editors responded to receiving her genetic risk scores.

Read more from this podcast:

Exploring the Ethics of Genetic Testing

Exploring the Ethics of Genetic Testing: What Does Consent Mean?

Exploring the Ethics of Genetic Testing: Where Does Duty Begin and End?

Data from Direct-to-Consumer Genetic Tests Used To Create a Drug for Inflammatory Diseases

Chronologically, I'm 23, but Biologically – I'm 26

Large Study Suggests Blood Type O May Be a Protective Factor Against COVID-19

One Year on, Scientists Defend Canada’s Anti-Genetic Discrimination Law

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Meet the Authors

Holly Large

Holly Large is a PhD student at the University of Leicester, with interests in public health genomics and science communication.

Laura Elizabeth Lansdowne

Managing Editor

Laura Lansdowne is the managing editor at Technology Networks, she holds a first-class honors degree in biology. Before her move into scientific publishing, Laura worked at the Wellcome Sanger Institute and GW Pharma.

Molly Campbell

Senior Science Writer

Molly Campbell is a senior science writer at Technology Networks. She holds a first-class honors degree in neuroscience. In 2021 Molly was shortlisted for the Women in Journalism Georgina Henry Award.

Ruairi J Mackenzie

RJ is a freelance science writer based in Glasgow. He covers biological and biomedical science, with a focus on the complexities and curiosities of the brain and emerging AI technologies. RJ was a science writer at Technology Networks for six years. RJ has a Master’s degree in Clinical Neurosciences from the University of Cambridge.